Our Psoriasis Tribe (BLOG #11)

The creator of the documentary was gay—older—from a time when it was definitely not all right to be gay. His experience lead him to create this quite exceptional “take” on the world of exclusion.

He chose a Down Syndrome, fairly high functioning, young man. A ‘small person’–a woman. An autistic boy. And, of course, himself. He showed what happened to each individual as they found themselves and their tribe. How they came to realize that they were not alone.

And that’s how I feel about psoriasis. I am part of a global tribe. A family of people all over this world who have this disease and share their trials with psoriasis but also their hope that they might emerge from this challenge victorious.

And although I know that there are problems with the Internet and Facebook, I also appreciate that it has brought people together. People who might have felt isolated. People who can meet others and share their journey.

I don’t know if this protocol will last forever. And I don’t know what percentage it’s helping. There are no statistics. There’s not much precedence. Only a doctor in Brazil who works with a variation of our protocol. And has been for decades.

I’ve never met a doctor who either knows about high dosage D3 and K2mk7. Or the calcium issue. Or the importance of magnesium. And I certainly never met one who recognizes the success of this natural remedy—in spite of all the testimonials.

Try talking to a medical professional about this protocol and you get to experience the raising of a wall of refusal and rejection that is impermeable.

But tribes survive. Our protocol has reached people in Canada, the U.S., Mexico, Australia, New Zealand, China, Vietnam, Turkey, Italy, England, France, India, Saudi Arabia, Madagascar—so many places I will only ever see in books. And they all have the same fears and desperation. The same questions. The same hopes. The same vulnerability. Different cultures. Different colors. Same disease.

We’re a tribe. Here to walk each other home. To look at photos bravely posted and not wince or judge or recoil in horror. To rejoice in another’s success. Knowing how it feels.

When someone sends me an e-mail or a FB comment to say that their skin has, amazingly, healed I feel such a sense of joy. One more who made it! One more who can spread the word. Even with this protocol we will probably always have this disease. But we can control it rather than helplessly having it control us.

We’re a tribe. We hold together. We walk each other home.

Much love from Dakota and her little dog, Lucky

This photo was taken when I got that flare a couple of years after starting the protocol. That’s when I realized that products “fortified” with calcium were just as bad as dairy.