Elizabeth: I haven’t been on the website since March so that’s why I haven’t answered your questions. I am not a medical professional so it would be out of integrity for me to answer questions based on your current medical issues. You need to ask your doctor these questions.

First, I want to apologize for all the questions. I guess I was over excited after reading your webpage. I really only have two question after reading your protocol in short summary and also in more detail. Second, I want to thank you and Charlie for all your hard work in putting together this newsletter and psoriasis information that will probably help a lot of people.

I don’t feel like I really “belong” with most of the people here. I have had scalp issues which no dermatologist (after seeing 14 plus several internists, and general practitioners family doctors). No one could figure out what was going on with my scalp. Of course, there’s much more to the story, but I will fast forward to February 2020 when the 14th derm said have seborrheic dermatitis, then May said I have sebopsoriasis. So my psoriasis is new and is only on my scalp right now.

I really just want to get your opinion on something but I have to give you a little history first. I only have one kidney. I lost my left kidney in 1999 (benign oncocytoma size of a softball). I also have osteoporosis (2017). I read where this protocol is good for that as well. It’s my kidney I worry about. My nephrologist told me I could not take the osteoporosis drugs that would reverse the osteoporosis, so I took 60 or 90 days of a Vitamin D (can’t remember if it was D3 or just D). The doctor that prescribed it said that is all I could take. No more after that. I moved to Houston right after that and didn’t know what that meant at the time.

1. Do you think taking this long dose of Vitamin D3 would bother my one little kidney (or my liver)? (I will see another Derm on March 26 so will ask him.)

2. I have been having trouble with my liver as well. I’m on a dosage of a drug called Ursodiol 300 mg. twice a day for that, then if my liver tests aren’t better in April/May he is going to have to do a laporoscopy to see what is going on, and I’m praying I won’t have to have surgury or that I won’t lose my liver somehow.

ok, way too many questions many of which can be answered by reading the information on this website. Just avoid supplements that contain extra calcium. I use Life Extension Super K but you can’t get it in Canada. I have to cross the border to get it. And yes I still take the D3 and K2mk7 in separate pills. Usually 15,000 is my maintenance level. I go up if my skin reacts to something. Like stress! Which, as you can imagine, is a little high these days based on the world situation. Cack!!!

The doctor changed my dx from Seborrheic Dermatitis in May 2018 to Sebopsoriasis in February 2020. It has definitely gotten worse but fortunately not as bad as some I’m sure. I do have osteoporosis, diagnosed around 2014. I’ve had this scalp issue since 2016 with rapid hair fall in one spot. It grew back, but it has started again. Instead of falling out completely all of a sudden it looks as if someone has cut it off anywhere from 1/2 inch to 2-1/2 inches. It’s in the back and top of head close to the crown area and it sticks straight up. Then the back hugs the skin until it gets almost to the bottom back and that’s where it’s growing. I still have my bangs long. The sides are clinging to scalp…every area is very thin except the top toward crown area and it’s just short short and spikey….the rest is thin and close to my head. I wear a head cover in public.
Did you have scalp and hair problems too? So far that’s the only place I’m having skin issues but it’s trying to get on my forehead. Did you have that too?
Do you still need to take the vitamins to manage the psoriasis?